Face 1557


Hi, my name is Victoria and I have ankylosing spondylitis (sounds a little bit like going to an AA meeting and saying “and I’m an alcoholic “,doesn’t it?)

I was diagnosed with AS when I was 15.
 For a disease that supposedly primarily affects men,  my family did not apparently read the rules. For every single woman born into that bloodline, we are all affected by AS or fibromyalgia or both. The men experience nothing.
I was the youngest to be diagnosed.
That was actually only a year ago.
It started as a horrible pain in my left knee then to my whole left side and finally to the rest of my body.
The pain is excruciatingly sore for most days and I miss quite alot of school although I am trying extra hard to keep the marks up.
 Good days are characterized as the days when I can actually get up.
 Bad days are pretty much everything else, to the point of crying out, getting sick and having close to no sleep because even the blanket that was supposed to be a comfort only makes it worse.
 South Africa, Africa

One Response to “Victoria”

  1. Dear Victoria,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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