Tina Looney


Face 1010Hello my name is Tina looney I am from Ocean City Maryland. I am 41 years old I have been battling with AS for many years. I have had problems my whole life and went undiagnosed for over 10 years going from doctor to doctor all telling me they could not help me. I would go to a doctor and they would promise to help me and the next visit say sorry I can’t help you. I would have given up if i did not have my mother. She pushed me all the way. I had to have my shoulder replaced and the doctor said I can get rid of the pain but it won’t work but at least no pain. But it was out of socket and fussed to my side so had no choice. I Finally went to the Mayo Clinic in Florida where I was to I had AS I always wanted to know what I had even if there was no cure but it was a shock to hear. By the time I found out my neck and spine were fussed. My ribs are affected and out of a 10 I breathe at a level 1. I am taking Enbrel witch is helping. There are days when I wish I had more Meds. I work as a mgr at McDonald’s and am on my feet 9 sometimes more hours a day 5 days a week. I just went to see my ortho doctor for my cortisone shot and he took x-ray and said he wants to do surgery caue I am loosing part of my shoulder. I sat in my car and cried for 30 min. I had MRI and see him again next week. I will get second opipion and talk to my rhuemy before I decide. I don’t want to have the same thing happen to this arm like the other one cause that will mean I mIght not be able to drive and maybe even work. I don’t want disability unless I can’t do anything else. I have worked since I was 14 and don’t want to stop. I love that I found that group. I don’t know anyone near me that has AS and people don’t understand how hard it is to live with this day after day but you do and are a true blessing and I thank you for caring and listening.

Maryland, United States of America


One Response to “Tina Looney”

  1. Dear Tina,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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