Tina Flowers

I am newly diagnosed with AS, and it is an uphill battle but we have to dig deep inside to fight it and I know each of us can, and we all can lean on one another.

Arkansas United States of America

2 Responses to “Tina Flowers”

  1. Dear Tina,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. AS an unknown disease but a very known disease in my life.
    It has been so many years that I wanted & yearned to find out what was wrong with me.
    I ended up going to numerous doctors finally my regular family doctor said you need a specialist. So upon his pleas I ended up with a quack doctor that said I had fibro but my symptoms continued to get worse, I felt like a balloon about too explode, the inflammation was going way beyond to the extreme.
    Finally my sister told me to come to her Rheumatologist in Texas, so I made an appointment; she did x-rays and ran all kinds of tests on me.
    So the day we all went in for results ( my mom and sister) doctor thought at first it was cancer but didn’t tell me that she let my sis know it wasn’t looking good, so of course I didn’t know of this only they did when we arrived, doctor said I had the blood marker HLA-B27 for Ankylosing Spondylitis I was in shock never had heard of it , but now it explained why I couldn’t stand without my back having spasms ( had to stand with one foot up on its toes to get relief) also I could hardly walk cause hips hurt so bad, also my mom and I had noticed a hump on my back up by my neck, and my feet were in bad shape also doctor said there are spurs all on both of them( I have to wear insoles to be able to walk and stand now) my hands were getting knots on them ( knuckles and palms) I knew I was in for a long journey ahead , so we started treatment, I am on injections of methotrexate given by myself in tummy or thigh, once a week , it makes me so tired when I give the shot and real emotional, but I am hoping it gets it in check.
    Am I scared??? Well who wouldn’t be this is a very serious disease , I stay sick constantly ,get over one thing and get another, this disease effects your immune system & plus the chemo doesn’t help either.
    There are good day and bad days, I get so down because I am not me anymore, the fun and outgoing woman I once was, but thank God he has let me be here for now.
    I have a lot of support from family & friends but most of all my fiancé and my 10 year old son, they both keep me grounded and focused.
    I will not give up & it will take a lot more to take me down, my sister tells me it’s a mind thing, so I repeat over and over.” YOU WONT TAKE ME DOWN, BRING WHAT YOU GOT BECAUSE I AM STRONGER THA YOU ARE AS”
    I have to control my stress & not to upset because it makes my issues worse so I try to avoid what I can.
    For any of you dealing with this like I am, I can tell you that prayer & leaning on God helps me make it thru.
    I have been diagnosed for 2 years now but lived with since I was 30 years old, I am 45 years old now, so it’s been a long battle. Just know don’t give up keep pushing thru to live your life it is for sure a blessing to be here.
    I feel there will be more with Ankylosing & it will be finally understood & may have a cure in the future, as of now there isn’t one only ways to control it from doing more damage.

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