Terji Beder

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After being diagnosed with AS in January 2017 it took me 23 months to experience my first moment without pain. It only lasted for about four hours and then the pain took off again.

I think it is very important to spread awareness of AS so that people get a better understanding of what the situation is with us AS sufferers. I am therefore always trying to be as open as possible regarding my condition.

Even though I live with this pain every day I find it impossible to explain to people how I feel. I somehow can’t express what I’m feeling in my own words. So instead I draw and write poetry to express what mere words can’t grasp which also serves as self-therapy channeling my madness.

On April 15th we saw the burning of the Notre Dame cathedral in Paris. While watching this tragedy on television these few words hit me which might be relatable of some of you readers. I hope you enjoy the poem.

All the best, Terji Beder, the Faroe Islands

If you are curious about my pretty dark drawings hit me up on Instagram at terjibeder

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One Response to “Terji Beder”

  1. Dear Terji,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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