Tanya Amstutz

Face 1368My name is Tanya Amstutz, I’m 34 and I was just recently diagnosed after struggling for 2 years.
My story begins with the conception of me and my husbands first child.
2 months into my pregnancy, I woke up with excoriating pain in my left butt cheek. I couldn’t bend my leg or weight bear. I was so scared because the pain literally came out of no where, I had no prior problem and no accident had occurred. My husband took me to the emergency room and of course since I was pregnant, no one could do anything and the recommended seeing a neurologist and to contact my OBGYN.
While I waited for my neurologist appt, I saw my OBGYN who assured me that this was all pregnancy related. Too much relaxin being produced was causing my SI joint to spread and that it would go away after delivery.
I saw the neurologist who told me the same thing. She thought it was the baby pushing on my sciatic nerve which I thought was insane because at that point, he was no bigger than a walnut. She recommended PT until I delivered and then told me if 3 months after I had my son I was still in pain to come back.
2nd trimester rolled around and I was in so much pain I couldn’t walk or drive, I couldn’t sit for very long and had to quite my job. I went to PT every week. Tried dry needling and stretches but nothing worked and I just got worse. Besides the pain in my butt cheek, the pregnancy was great and I gave birth to a beautiful little red headed son in 2013. Unfortunately, I had back labor and due to all my pain and SI joint issues they gave me an epidural higher up and it still worked, thank goodness.
After I had my son, I continued with PT, got acupuncture, massage therapy and nothing was working. In fact it was getting worse.
I went to the neurologist again and had a MRI which showed a massive amount of inflammation in my left SI joint. She said, oh well, you have arthritis and there is nothing we can do but send you to pain management. I kept saying, how could I have arthritis at 32 with no prior issues. This just came out of no where.
So, I went to pain management while still doing PT…we are now over a year of weekly PT. We tried steroid injections and got me on meds. I had tried a bunch of anti inflammatories that didn’t work and just made me sick. Now, at this point, my pain spread from the left SI joint to my right SI joint and up my lower back. So, nerve blocks here we come and after that a full RF bilaterally L5-S1.
I was still in terrible pain. I got a second MRI that showed the inflammation had spread into the right SI joint up into the facet joints of L5-S1.
I saw a spine specialist and they found nothing wrong. My GP ordered blood work, no inflammatory markers or indicators of lupus. At this point I am so frustrated. I can’t walk, play with my son, drive…it was horrible.
So I finally saw a rheumatologist. She drew blood and I came back positive for HLA-B27 and she said she thought I had AS and wanted to start me on biologics right away. She was very unfriendly and rude so I decided to get a second opinion.
I met with a rheumatologist who specializes in auto immune disorders, specifically AS. After reviewing all the notes from every doctor and all my MRIs and X-rays, he officially diagnosed me with AS and I’m due to start humeria this Friday.
To say the least, this freaked me out because I actually knew what this was. I studied forensic anthropology focusing on paleopathology and one of my skeletons had AS. I knew the potential damage of having this disease.
While I was waiting for my second opinion, I joined your support group and another so I could ask questions and vent to people who understand and it has helped me a lot…just knowing I’m not alone.
I’m terrified of what my future may hold especially since my pain and swelling as spread to my knees, thumbs and wrists but I’m trying to stay positive for my husband and son.
I just wanted to share my story and get an official Faces number and a bracelet so I can help spread awareness and show my support.

 

Colorado, United States of America

I wanted to let you all know that Tanya passed away on 05/17/2016


18 Responses to “Tanya Amstutz”

  1. Dear Tanya,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. rest in peace sweetheart. your battle is over.

  3. No more pain Tanya, god bless you.

  4. May you eternally rest in peace while watching over your beautiful daughter and husband.

  5. God Bless your Soul Tanya; may you rest in peace and may your family find peace that surpasses all understanding…..💙🌹

  6. I hate this stupid disease more now than I ever have, it’s taken a sweet woman away from her baby boy…..there has to be a cure out there somewhere.

  7. To Tanya,Family I’m truly sorry in hearing of Tanya passing. Warm blessing are sent to you all. Face #390

  8. It is a sad day for all of us AS warriors knowing that you have passed. Prayers for your family to heal.

  9. So heartbreaking. Praying. So hard to understand her getting so few years.

  10. I’m sorry 😢 praying circles around her family. I’m thankful she shared her story to bring awareness of AS. My own daughter shares the same diagnosis and many do not understand. May Tanya rest in peace.

  11. 😦 r.i.p. my friend

  12. Such a short journey in this world. I pray that all of your loved ones can find peace in knowing that your suffering is over. – #775 Leigh

  13. This is the saddest way to find out that a niece has passed away. Not on Facebook or social media. My heart is breaking for Tanya Jason and the baby. I cannot even believe that this has happened to a most beautiful soul of a mother wife daughter sister niece. My prayers and deepest sympathies to all who have known and love her. I have since her birth.
    Aunt
    Robin

    • Thank s for the kind words Tanya was such a beautiful soul kind loving humble none judging there are no words to express my grief

  14. Its a sad news for us , may her soul rest in peace.

  15. Rest In Peace Tanya.
    No more pain now, the fight is over !!!
    In the arms of Jesus

  16. Tanya’s mom I had no idea how sick she had become be safe and question your doctor s

  17. I’m Tanya’s mom i didn’t realize the severity of her diagnosis that is something I will have to live with for the rest of my life

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

 
%d bloggers like this: