Susan Amason

Face 1647

About 5 years ago I started to notice something wasn’t right with my body and the way I was feeling, at 1st I chalked it up to working a pretty hard on the body job, but it was getting worse and worse all the time, so I decided to see an orthopedic doctor because a lot of my pain was in my right shoulder area, he did xrays and continued to treat me for a year+ for a rotator cuff injury, shoulder injections, physical therapy, etc.. You name it, he was doing it, but nothing was helping. Finally! After a year + he sent me to a specialist, this doctor was in with me doing an evaluation of my body for maybe 5 mins when he said, this isn’t a rotator cuff injury, there’s something wrong with your neck/spine, and there’s nothing I can do to help you because that’s not my area, but I will send you to someone who can help. At this point I’m pissed that I’ve just wasted a year + of my life, doing things I didn’t need, taking meds I didn’t need, spending a lot of money I didn’t need to spend, etc… but I’m also happy because I’m finally getting somewhere! So, he ordered a EMG to see if there was any issues with my nerves and sent me to another doctor that was some kind of chiropractic care specialist, this doctor really put me on the right path and was really the 1st doctor to listen to me, believe me, and go out of his way to help me. He did the most thorough exam I’ve ever been given is my whole 42 years on this earth! He was easily in the room with me for over an hour and he didn’t mind. He asked every question he could think of, he also ordered test that no one else had ordered. All the blood work, xrays, he even did an MRI on my brain to make sure it wasn’t affecting my brain. When the blood work came back and I tested positive for ANA, he called me, he referred me to a rheumatologist and a pain management doctor, from that point I started seeing the rheumatologist and pain management doctors, granted it took about 3 months to get in with the rheumatologist, but I was grateful to be going in a positive direction. Finally after getting the doctors that worked well with me, things started to unfold. 1st I fold out about my having Lupus and Sjogrens syndrome, but I knew there was more, with the amount of pain I was having in my neck and back, the rheumatologist did more blood work and I tested positive for HLA-B27, this is when I found out about having AS and Fibromyalgia, my rheumatologist put me on biologics immediately! My 1st biologic was Remicade infusions, I only made it to the 3rd infusion when I found out it was attacking my liver, so I was taken off, I was then put on Humira injections, I’ve also been on a cocktail of other medications this entire time, but after about 7 months or so, the Humira just wasn’t working, so I was switched to Cimzia injections and Methotrexate, also still taking the other meds. I’ve been on the Cimzia and Mexotrexate for 7-8 months so far and I do think so far these meds have helped me the most. I’m still struggling almost everyday, but sometimes I have a normal moment, which gives me hope that one day I can be myself again. I lost my job because I couldn’t preform the duties I was expected to do, which I understand, I’m just not reliable, I applied for disability and have been denied twice even though I can’t work and my doctors have said I’m disabled, after the 2nd denial, I got help from an attorney and at this point, I’m still waiting for a court date. I’ve been very lucky to have a husband with a good job and insurance, I also have 3 awesome sons! In the last few months I found out I have Endometriosis and that my uterus is twice the size it’s supposed to be, I’m scheduled for a hysterectomy on the 13th of this month, we’ve tried everything else, the doctor said there’s nothing else they can do for this, but to have the hysterectomy, he plans to leave my ovaries “thank goodness!” Unfortunately, I’ve had to stop the biologics and the Methotrexate to prepare for the surgery, I’m expected to be off the meds for at least a month and a half or more depending on how I’m healing and praying there’s no issues with infections! So, that’s my story up to this point. I hope this helps, I’m praying for a cure! Not just for AS, but all Autoimmune diseases! Thank you for sharing our storiesđź’ś

Texas, United States of America


One Response to “Susan Amason”

  1. Dear Susan,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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