I have been reading through everyone’s stories just to be encouraged.
Here is my story …….
14 years ago I began with numbness in my left leg. I went to a Neurologist who thought I had MS. He did all the MRI stuff and could not find any lesions on the brain or spinal cord. I ended up seeing a Gonsted Chiropractor who has in the past done nothing short of keeping my life comfortable with minimal pain all these years. He found that it was my L5 / SI joint that caused the numbness and after one month, I started to recover. He asked me to be patient and follow his lead for the first several months. I still had pain over the years and found myself going to the chiropractor more often than most people.
Somehow with all that I went through, I ended up taking Ativan and that has helped a lot with the pain as well as some anxieties. I have Graves Disease and had that radiated about 17 years ago. That stopped my thyroid from overacting. Another autoimmune disease process.
This past February, I started having joint pain in my knees and wrists pretty significantly. Finally at the 2nd Rheumatologist, he did enough investigating to come up with Ankylosing Spondylitis. He actually also referred to it as Undifferentiated spondyloarthropathy, but gave me articles to read on AS.
I tried Sulfasalazine with massive cramping in my colon. Lasted for hours and only the pain medicines calmed this down after quite some time. I am trying to juice and eat healthy, but I don’t know where I go from here. I know we need Vitamin C for Collagen disorders.
I hear everyone’s heart and I too feel the fears, unknowing, sadness at times. I went through the frustrations with doctors shaking their head, almost laughing at my situation. That is difficult when you come in hurting……I am grateful to have found someone that seems kind and caring about what I am going through and wants to help. I am sensitive to so many medications, I don’t know what to do.
I was just diagnosed last week. I am 42 years old and this started at age 28. Finally have some answers. I am grateful but I have researched a lot and I am trying to be excited but this doesn’t have a cure….. I am very grateful to have found this website. I felt very alone at first…
Thank you Cookie for putting this together for each of us. A huge support group.
Blessings to all of you that are going through this. Laughter is good medicine. How can we learn to laugh more? 🙂
Texas United States of America