Hi there. My name is Sharlene Huntley and I live near Columbus, Ohio. I am originally from Ontario Canada. I have lived in the USA for almost 10 years now. I was diagnosed summer of 2016 with AS. I believe my symptoms started in May of 2010 with a bloated stomach and in November 2010 I developed a swollen ankle. For the next 5 years I was treated for plantar fasciitis and instead of getting better, it got worse. January 2016 I had the most achey feet and ankles. I was limited in how much I could do and I was fed up, sad and mad all at the same time. In March of 2016 I got a rash, they called it the butterfly rash and within a month I had seen a rheumatologist. I am HLA B27 positive and found out a cousin of mine who is the same age as me has it as well. I explained to the doctor ” I feel like I am stiff from the waist down” I don’t have much pain with my upper body, but sometimes. It is Mostly my lower body. Especially my ankles and feet. Hips sometimes too. I have a family that tries to understand but they can’t see my pain. I work a 3 hour a day job serving lunch to school kids, I can’t be on my feet too long. It’s been a long road but it is better knowing where the pain and stiffness comes from. I want to be a warrior of this disease and become involved in the AS community.
Ohio, United States of America