I was diagnosed when I was 17 (about 18 months ago) with AS, after 6 months of continuous back pain and multiple doctors telling me I would be fine in a few weeks. After the first medication failed, I was put on an 8-pill-a-day regime, which was as unsuccessful as the original plan. After 3 months of Enbrel injections failed to stop the pain as well, I was put on 300 mg of Remicade, administered through an IV, every 4 weeks. That was December of 2010. I’m still on Remicade, but it’s losing its efficacy and my pain has since spread to my knees and Achilles’ tendons. The doctors are hesitant about increasing my dosage because of my weight; despite being 19 and 5’10, I hover around the 125 lb range. I’m so thin because I have obsessive compulsive disorder, which severely limits what I can eat; only a select group of foods, prepared a certain way. There are days I can’t move, days I limp around my college campus like a man 4 times my age. I don’t want to get out of bed in the morning. I have insomnia and have trouble seeing a future that isn’t more of the same, or worse.

Last December, I got the words “Stand Tall” tattooed on my side. I’m trying.
The Midwest, United States of America

One Response to “Seth”

  1. Dear Seth,
    Thank you for sharing your story with us. One quote that has helped me is,
    Happiness if forgiving yourself for being human.

    Do the best you can do that is all anyone can ask of themselves.
    Wishing you the best.
    Sincerely Cookie

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