My name is Samantha Yates and I have been battling AS since March of 2014. I originally went in for an LONNGGG overdue eye exam and was referred from optometrist to ophthalmologist, and then to UCSF for further review. I have advanced anterior uveitis with a cystoid macular edema (a cyst on my retina!). Within a few weeks of that diagnosis they found out that it was a systemic issue and I am HLA B27 positive, leading to the AS diagnosis.
With the help of Remicade, Methotrexate, and some painful injections to the actual eye (and a few new pairs of sunglasses, of course!)- my symptoms were under control for almost a year. Unfortunately, with the change of insurance I am struggling again to basically start over with treatment and a new team. AS/Uveitis have eaten away all the color off my right eye and I have some bad “joint days”, but with the help of my #1 supporter my mom- I am hopeful things will work out in the end.
Attached is a picture of my mom and I and you can notice the differences in my eyes. A second picture is me in my happy place- the sun!!! I’m sure you can relate to my warm weather obsession J
Thanks for providing this outlet for sharing!!
California, United States of America