15 January 2011
I’m a 31 year old Police Officer from Glasgow, Scotland.
I’m married to Suzanne and have a son Jack who is about to turn 3 years old and a baby due in 3 weeks time, oh and I suffer from AS and most of its side affects!!
My first signs of AS started at the age of 13, with knee problems, this was put down to being heavily involved with sports and general wear and tear. At this point my cartilage was all but removed from my left knee. I continued to play Volleyball and Football daily until around the age of 16 when my knee pains and lower back pain was just too much. My pains were again put down to the sports and growing pains.
I joined the Police Force at the age of 19, a year later I developed a lot of bowel problems which lasted for the next few years, I still had the back pains at this time. I under went every test possible for bowel problems as there is Crohns disease within my family. Nothing proved obvious enough to diagnose. I still suffered with my back but was constantly told that was because of my bowel problems. At this point I suffered really badly with Depression and Anxiety with all the time I was losing off of work as well as Iritis and other what I now know are common AS side effects. I was so bad some days that I couldn’t even sit in the same room as close family members or friends. Of course everyone knew what was wrong with me and had their own opinions and treatments, funnily enough none took my pain away, a Gastro Doctor told me to “Just live with it” as there was nothing they could do for me, I had them questioning if it was all in my head. Thankfully my wife who saw what I was like daily believed me and my own GP was great too. I was on more pills than I had ever taken, nothing was touching my pain.
At the age of 26 I spoke to my wife’s uncle who is a Specialist in America, he had seen me suffer on his visits over the water over the years and said he knew what was wrong. I thought as usual everyone knows what it is, but he explained how he felt that my bowel problems were coming from my back rather than the other way round. I had only met my Rheumy for the first time the week before this and before I knew it I was having the HLA-B27 test done, an MRI and all the other stuff. On my next visit to the clinic I was told I had AS. As none of the pills touched the pain I was put on Humira, this was great and turned my life around before it started attacking my liver, I then had to change to Enbrel which I prefer as I find the twice weekly injections are better than the one injection a fortnight on Humira as I now don’t have a long spell of time between injecting. I do still suffer from bad flares and am constantly in daily pain which is kept as low as possible with all the pills, patches and injections that I use and these let me try to live a normal AS life with juggling family and work. The crutches and walking stick are always kept handy unfortunately as nobody knows what tomorrow will bring but hopefully they wont be used for a while.
Just before Christmas 2011 I was taken into hospital with heart attack symptoms, after numerous tests it now appears that the AS has now attacked my heart lining (Pericarditis) which just adds to the aches and pains caused by this dreadful condition, I’m heading back to Cardio next week for more tests in relation to this. Anyway, I have a busy year ahead with the new born arriving soon and also numerous fundraisers for AS currently being organised so fingers crossed that despite the bad start to the year that I’ve had I will have little flares and manage a nearly “normal” year, if there is such a thing with AS.
Stand Tall and Don’t Let The “AS” Grind You Down