Rob Barnes

Face 1316

I have only been diagnosed with AS for a few months, but I’ve been living with the symptoms for several years. From what I’ve learned, I became symptomatic much later in life than most (I am 41 years old). Now, my goal is to simply control the disease and minimize it’s progression so that I can continue to enjoy life with my beautiful wife of 15 years and my two sons, ages 14 and 11. I’m still working a full-time (45+ hours/wk) desk job and, although the pain and fatigue – especially the fatigue – are daily challenges, I will continue to fight so long as God wills it. My heart goes out to those AS sufferers whose disease progression is so much more advanced than mine. Despite my diagnosis and uncertain future, I still consider myself a very lucky man.

Indiana, United States of America


One Response to “Rob Barnes”

  1. Dear Rob,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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