Hi my name is Raewyn I’m 52 years old and I live in Melbourne, Australia .
I wasn’t diagnosed with “AS” until about five years ago, though I have had alot of pain from my earliest twenties and continuous “Anterior Uveitis” I spent many visits, hours at doctors, telling me it was sciatica, when I have struggled to take a step, try to walk, I even at one stage, had a doctor tell me, stop trying to get workers compensation ! even though I hadn”t even mentioned this lol ! Unfortunately “AS” is a hidden disease ! and in between flare ups, no one in my case would ever know I had this.
Fortunately, five years ago, I found a great doctor, who said to me, he thought it was some form of arthritis, but he wasn’t sure. So after visiting a Rheumatologist, having MRI, Xrays and a genetic test, which confirmed I have the HLA-B27 marker, I got the diagnose of “AS”
I try not to let “AS” Stop me from enjoying my life, defining who I am ! and while I can still walk, for “AS. ” is now progressed to my ribs and neck. I am going to keep working , I just recently got back from Thailand and Indonesia and Malaysia with my hubby and youngest daughter, I have two girls and my oldest daughter is getting married next month and I’m looking froward in the future hopefully to enjoy having grandchildren.