Penny

Hello, My name is Penny I am 27 years old and I am from Melbourne Australia. I have AS. My pain started in 2002 when i was pregnant with my son, I would have trouble standing after sitting for a period of time. Walking at this point was only painful after i had been sitting but once i got going the pain eased. I had a ‘flare up’ (as i now call it) and went to a Physiotherapist who told me i had sciatica due to the pregnancy. I spent the next few years putting up with the pain, getting in and out of chairs was very difficult but i had my little boy to raise so I just ‘got on with things’. I had scans and x-rays overtime but I was told there was nothing wrong. The pain became unbearable when my son was about 4. My boyfriend at the time would sit with me as i screamed and cried in pain. I couldn’t describe Exactly where it was but it surged all the way from my hips down into my feet, there was no position i could lay in that could give me any comfort. I went back to the doctor who prescribed Mobic and orded more xrays, and an ultrasound. Nothing.I also saw a chiropractor who kindly took my fathers money and ‘treated’ me for 10 weeks only to tell my father I needed psychological help because there was nothing wrong with me physically. The doctors words to me “take these (mobic) you will be one them for the rest of your life” But why?? I was also told to walk as much as i could ..”but i cant walk!!”. So i took the Mobic and rested until I could walk (without excruciating pain) and when I could I walked for hours, and jogged and even when it hurt like hell I kept walking. In 2010 I started getting headaches (or migraines without the black vision). this went on for 2weeks ( silly not to go to the doctor but I needed to work) Until my eye became red and really sore. I went to the doctor and i was given some drops for an allergy related problem, within 24 hrs i was back at the doctor where i was told i needed to get to the nearest optometrist for an examination. Before I knew it i was at the ear and eye hospital, having blood tests and being told i had Iritis AND I am HLA-B27 positive. I was done with my Doctor at this point and started to see someone else who made the connection to AS and sent me to a rheumatologist, I had more xrays and an MRI and there was the final diagnosis. The pain is now in my ribs and waking up is the worst part of my day, if i wake in the middle of the night i have to get into a hot shower to ease the pain I also take Tramadol at night and Panadol Osteo during the day, Im also on Naproxen and Nexium.
❤  Pen  ❤
Melbourne, Australia

One Response to “Penny”

  1. Dear Penny,
    Thank you so much for sharing your story. It seems to be common for women to be brushes aside, feeling what is wrong with us is emotional or hormonal. Such a shame that even today, this still happens. Maybe one day we will make a difference in this. Here is to hoping we do!
    Sincerely Cookie

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