Pamela Jones

Face 745I’ve tried to write my story to send in several times and end up giving up. It’s just so discouraging to see how long I’ve struggled with this disease but today I’m determined to do it. My story is like most of the rest of you, I started having symptoms in my early 20’s but I wasn’t diagnosed until my 40’s. I am now 60 and struggling to keep up with my retired husband, wondering how the heck he hasn’t realized before how limited I am. I frequently sleep 12 hours at night yet still be tired enough to nap the next day. It’s so hard to be disabled when your mate is fully functional! He has become a pro at loading my scooter so I can go places with him, at first he was embarrassed by it but thank God he got over it. I so hate reading about young people with this stuff but at the same time glad that you got help earlier than I did so at least that has improved.  One of my daughters has AS and I hope treatment continues to improve before she gets my age.

Pamela Jones

Oklahoma, United States of America

One Response to “Pamela Jones”

  1. Dear Pamela,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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