Nicola Egdell

I am 21 years old and I was diagnosed feb of this year. It has taken 5 years to get a proper diagnosis . My consultant for 5 years originally thought it was my knee and did an unnecessary operation , then for 3 years after told me my back pain was over compensation for my knee . Now finally I’m getting the right treatment unfortunately they have had to hit me hard with treatment which caused a heart problem and I had a heart operation a month ago . I am now on Anti TNF and hoping this treatment works.

Lincoln, United Kingdom

One Response to “Nicola Egdell”

  1. Dear Nicola,
    Thank you so much for sharing your story with us. My goal with The Faces of Ankylosing Spondylitis, is to help young people to find the courage to be their own best friend and advocate to work at having the best life that are capable of. I want them to SEEK out information ASK questions DEMAND answers ADVOCATE for them selves. I hope this site helps people to find strength, courage, hope and acceptance through our stories.
    SIncerely Cookie

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