Face 2130

I was blown off or misdiagnosed for many years. Things got really bad after my daughter was born. Doctors insisted that I just wasn’t handling motherhood well. I kept pushing for new doctors and demanding they look into what was wrong. Someone finally listened and ran the right labs. My CPK and inflammatory levels were through the roof. Internal medicine sent me off to a half dozen specialists where the process to find a proper diagnosis started. It got so bad that I couldn’t function. I couldn’t get out of bed without crying or vomiting from pain. I couldn’t dress myself or care for my child. After being diagnosed with AS, it still took several years to find the right meds. During that time, it started attacking my lungs. I ended up on oxygen at night and daily life was becoming a battle. Things were pretty bleak during that time. The pain was overwhelming and I started wishing every night that I just wouldn’t wake up this time.

Life is better now with the help of good physicians and proper treatment, but it’s still not easy. The damage is done and now I just try my best to keep it managed. I’ve had to learn how to live a functional and productive life with these new limitations and daily pain. Some days are okay. Somedays are unbearable, but I refuse to give up. I’m a mother, so giving up isn’t an option. She needs me. It’s my job to be strong and give her the best life I can. I’ve learned that I am stronger than I ever thought possible, and I’ve learned that there’s always a reason to be happy, even while in extraordinary pain. We must chose to find the reasons. It isn’t easy, but it’s worth it.

42 years old


Pennsylvania, United States of America

One Response to “Nichole”

  1. Dear Nichole,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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