Meghan
I first suspected something was wrong in 2002 (at 22). I had terrible fatigue and mild but constant pain. Getting a diagnosis was a journey. I’m thankful to finally know what is going on and to be able to treat it. I was diagnosed last year in 2016 (at 36).
My life (and my AS) has had lots of ups and downs. There were times when I was very functional (working a amazing full-time job, going to law school at night, volunteering 20+ hours a week, running 5ks while pregnant). There have been times when I’ve been much less functional (using a walker to get from the bed to the toilet and not doing much else). Most days (and years) are somewhere in between.
I’m currently a mom (two toddlers), a government analyst, an almost-lawyer (have the degree, but have not yet taken the bar exam), a cat rescuer (volunteer and am on the board of directors for a non-profit cat rescue), a pilates enthusiast (it has helped so much with the AS) and a disability activist (and really general political activist).
Pennsylvania, United States of America
Dear Meghan,
Thank you so much for sharing your story with us.
Sincerely Cookie