I first suspected something was wrong in 2002 (at 22).  I had terrible fatigue and mild but constant pain.  Getting a diagnosis was a journey.  I’m thankful to finally know what is going on and to be able to treat it.  I was diagnosed last year in 2016 (at 36).

My life (and my AS) has had lots of ups and downs.  There were times when I was very functional (working a amazing full-time job, going to law school at night, volunteering 20+ hours a week, running 5ks while pregnant).  There have been times when I’ve been much less functional (using a walker to get from the bed to the toilet and not doing much else).  Most days (and years) are somewhere in between.

I’m currently a mom (two toddlers), a government analyst, an almost-lawyer (have the degree, but have not yet taken the bar exam), a cat rescuer (volunteer and am on the board of directors for a non-profit cat rescue), a pilates enthusiast (it has helped so much with the AS) and a disability activist (and really general political activist).

Pennsylvania, United States of America

One Response to “Meghan”

  1. Dear Meghan,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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