I was diagnosed with Ankylosing Spondylitis in 1998

I started noticing something wasn’t right in 1982. AS has affected both my hips.

They both need to be replaced.

Every time  I have been “brave enough” to have the surgery, something has delayed it….

AS is no fun at all.

I have to take meds to help with inflammation I was just pulled off some because they were affecting my liver.

When I have inflammation, It hurts to move.
Making plans to do something is hard because one day I will feel just fine the next day I can’t get out of bed.

I’m tired of people thinking it is all in my head.

Until you walk in my shoes or anyone else with AS you will  never understand what it’s like.

I wouldn’t wish this on my worst enemy.

Marti (age 49)

Southwest Washington

4 Responses to “Marti”

  1. Dear Marti,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Marti,

    It is hard to share this info with the net, your courageous. I was diagnosed in the early 70’s and they had no information available. I was living in Longview, WA. then and had to order a book from Florida on interlibrary loan to learn anything. The only information I received that was of any value was “Stand Tall”. I can’t do anymore but it helped for many years. Be strong and believe in yourself.

  3. I can relate to people thinking it’s all in your head, or that the pain that you experience is the same pain they get when they get hurt. They really can’t understand what it’s like. I hope you get the help you need and are feeling good. -Adam from Vancouver

  4. I will carry you anyplace anytime, all you need do is ask my love. I promised to love you forever.

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