My name is Mark. I am 52 yrs old and was diagnosed with AS about 9 months ago. I suffered a spinal cord injury nearly 20 years ago that left me disabled with a multitude of neurological issues. Last summer, I started experiencing severe back pain above the level of my previous injury. I was sent to a Neurosurgeon who did CT and X-rays. I was shocked to learn that my spine is fused from T-1 all the way down. I was referred to a Rheumatologist who did multiple tests, diagnosing me with a severe aggressive case of AS. The fusion that has taken place thus far has all occurred within past few years as my previous back X-rays showed no fusion or even mention of arthritis. My Doctors are now working to try to keep the AS from fusing my neck. Scans show the AS in hips, back, and even right arm. My spinal cord injury hid most of the pain when this disease started in my hips. My health has drastically gone down hill in past 6 months as I battle the pain and severe fatigue. The best my Doctors can offer me right now is that they are trying to keep me from getting worse, but cannot assure me that I will ever improve from my current condition. Each day now is a battle, mentally and physically. This is a disease I would not wish on my worst enemy.

Texas, United States of America

One Response to “Mark”

  1. Dear Mark,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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