Because I do not have the gene inherent to AS, the Rheumatologist said I have Undifferentiated Spondyloarthropathy. The rheum I’ve been seeing isn’t very sympathetic or has offered any help or even explained this disease to me. I’ve been in crazy pain for 4 years w/o a diagnosis until 5 months ago. And, in that time had not been on ANY pain meds at all except Tylenol. Which we all know doesn’t help at all.. Just wanted you to know all the info I have gained and all the facts I’ve learned has been from first going to hurting but hopeful site and ASAP and visiting your blog site as well. Learned a lot, learned all the horrible pain I’ve endured for the last four years isn’t “in my head”, and learned what questions to ask, and that what I’ve been dealing with for years actually has a face. I’m new to facebook actually just joined to be able to join faces of AS. Thank you for helping people like me who after 4 years and 7 different kinds of doctors and countless years of unexplained pain, along with a solid diagnosis, have helped put the puzzle pieces together to put a name to this face.
Thank you for your commitment.
Sincerely, Marge Smith. 🙂
Oklahoma United States of America