Maddy is five years old and was diagnosed with AS in June 2012. Maddy’s mother has Ankylosing Spondylitis and when Maddy continually complained of pain in her knees, legs, back, and neck she asked her pediatrician if it could be likely that Maddy had AS as well. Maddy had the blood test and it came back positive for the HLA B27 gene. She will be going to see a pediatric rheumatologist in October. So far she has been taking tylenol and switching off and on between that and motrin. Her pain is becoming more frequent and painful the last few weeks. She has also begun complaining of not seeing well, and headaches.

As her mother, I  feel so bad that my daughter has inherited my horrible illness, but with me by her side offerring support and being her advocate, I will be sure she receives the best possible care.

Maddy and Her mother

Maine United States of America


One Response to “Maddy”

  1. Dear Maddy,
    Thank you so much for sharing your story with us. We are all working hard to raise awareness for all of you.
    Sincerely Cookie

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