Kimberly Bond

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Hi, I am Kimberly Bond. I was diagnosed with AS in 2012. I have probably been sick for a very long time. I had 7 surgeries in 6 years and thought that is why I had not felt good. I was overweight and that is why I did not feel good. I have one leg that is a tiny bit shorter than the other and that is why my back hurt. I have never been able to lay flat on my back and not get stuck. I never knew why. I could not lay on the floor or a bed flat on my back without needing help to get up. I never knew why. I used to be able to walk, a lot, not any more. I want to be able to do that again without feeling like something is grabbing my back and squeezing it. I was at work one night and my fingers curled up and would not straighten out or separate. I went to the hospital and they thought that I had Chiari malformation and put me in a neck brace and after a few months I was able to separate and straighten out my fingers. MRI’s and EEG’s later I was told I had bulging discs. Then my hands started shaking all the time and falling, they thought I had Parkinson’s and I was put on meds for that.  The first time I really felt that something was truly wrong with my back was when I couldn’t do the Electric Slide!!! LOL  My right hip would not work. I was a cheerleader, taught cheerleading and danced for years so this was heartbreaking. I went to the Dr. and they did x rays on my hips and did labs and sent me to a rheumatologist. I was diagnosed with AS, fibromyalgia and chronic fatigue syndrome. I started gabapentin and felt fabulous for about two weeks and then I could not see very well. I could not take that any more. Then I started on sulfasalazine, I started feeling great, for about a month, then I was so nauseated I could barely get out of bed. I have now been on Enbrel for more than a year and I can’t do without it. I have had epidural steroid injections in my back and neck. I have a disc extrusion in my neck. They have worked very well for me. I recently had a radio frequency ablation on my lower back and I feel so much better. I now feel like I can go back to walking. I am so excited for this!!!  Next I want to be able to dance again. This disease has cost me 4 jobs because I could not get up in the mornings and be on time. Then I could not function for a full work week without the fatigue overcoming me. My advice is to keep on going. Keep trying to do all of the things you want to do. But be careful, I almost drowned two years ago at the lake because I could not get any air after I had swam under water. Be joyful and pray!!  Do good for other people. Find something that makes you feel like you are making a difference. I work in the medical field and I feel like I make a difference. I am hoping this disease does not cost me this job but if it does I will find another. Keep going because what choice do we have!!!!!!!

Oklahoma, United States of America


2 Responses to “Kimberly Bond”

  1. Dear Kimberly,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Kimberly, recent AS and FMD dx myself, post thyroidectomy (HRAS Codeon 61 cancer) and Eagle’s syndrome surgery (Elongated calcified styloid process) and now fibrosis of dermal tissue via GADOLINIUM Contrast but NOT Nephrogenic systemic fibrosis ( at least they TELL me I have no kidney disease as yet!) are you at any other sites for AS on FB perhaps?
    Please check out wordpress you may want to grab a culpa first, some great resaserched info here knowing Contrast retention ( I have two contrasts in me, GADOLINIUM from 7 Mris w/contrast AND Barium from swallow study) http://www.gadoliniumtoxicity.com check it out, you will b surprised!

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