Kesha

Face 1241My name is Kesha.  I am 35 years old and was diagnosed with AS in August 2013.  I have suffered with  extreme back pain for well over 5 years.  It finally got to the point two years ago that I was in so much pain that I knew something was wrong.  I saw doctor after doctor, just searching for an answer.  I went to a local chiropractor that told me that I had a herniated disc and that I needed spinal decompression therapy.  This was without any x-rays or MRI being done.  I went through the 12 course treatment over a month period and wasn’t any better.  Actually I felt even worse!  He wanted me to do another 12 course treatment but I declined.  Since the treatment was not covered by my insurance and considered to be kind of “quacky,” all of the treatment costs came out of pocket.  So now I was in so much pain, broke, and didn’t know what to do.  Finally after several doctor visits I was referred to a Rheumatologist.  He listened to me and did some mobility testing and sent me off for a ton of bloodwork.  A couple of weeks later I went back for a follow up and amazingly I had an answer!  I was HLA-B27 positive and he confirmed my AS diagnosis.  When he told me what was wrong I had such a sense of relief.  I wasn’t crazy!  I truly was hurting….this wasn’t just in my head.  All the missed work, sickness, fatigue, unable to walk upright or even walk with a limp some days because my lower back and hips were in such pain finally made sense!  I’ve come to the realization that this pain is something that I will have for the rest of my life.  Some days, with the help of Humira, Celebrex, Prednisone, Methotrexate, Flexiril, and Neurontin, I can wake up and feel like, ok, I can do this.  The pain is tolerable on those “good days.”  Then other days I feel as though I wish I had never woken up.  These are the days that I have to rely on my amazing hubby of 16 years and our 13 year old daughter that was diagnosed with Type 1 diabetes two weeks before my AS diagnosis.  My little family’s support is unmeasurable.  I pray for a cure for AS so I can be the wife and mother that I need to be.

Thank you so much, Cookie, for this site.  You are truly using your gifts to make a difference in this world!

~Kesha

Texas, United States of America


One Response to “Kesha”

  1. Dear Kesha,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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