My name is Kelly. I’m 33 from Ormskirk, Lancashire, UK.
Thought out my childhood I always suffered with excruciating pain in my knees. GP typically put it down to growing pains until I reached 16 when they decided to operate and remove some bone (didn’t make a blind bit of difference!).
From then I just learned to live with the aches and pains and live my life!
When I was 25 I had an awful experience of iritis. It was so severe I was blind for over a week and a lovely ophthalmologist persistence got it back! He then started to run a variety of tests. Nothing looked conclusive although I did test positive HLA-B27.
I had regular bouts of iritis over the next 8 years with my lovely ophthalmologist continued to give me fantastic, immediate care and attention with the vow that “your eyes are like diamonds, so very precious”. Throughout this time he kept asking if I experienced any other new aches and pains and whilst I have always suffered with aches and pains I said no.
Pain in hips and lower back got so bad I told him at my next appointment and he immediately referred me to my rheumatologist. Great lady again. Had all necessary tests, scans, X-rays etc etc which showed only little inflammation. Certainly not enough for diagnosis.
Anyway after a prolonged period of time and more tests lol, i was eventually diagnosed with AS in 2012. As I had already been taking concoctions of anti-inflammatories and pain relief, they offered me biologic treatment. I opted for Humira after researching into it.
First month being on Humira, I had no real benefit. The second month however, it was like I had a new body!!! Amazing feeling!!!
But then after taking it for a other few weeks, the symptoms started creeping back in. They stopped the treatment immediately for which I was gutted about.
Now I am on Celebrex with paracetamol and codeine. Must admit I do take more that I should at some times but it’s the only way to kick the pain. This last 6-8weeks I’ve found I’m not getting the same relief from my meds and so I am currently waiting to go back and see my rheumatologist to see what they can do next.
Everyday is a constant struggle. Although people say they understand they simple do not!! Sometimes when you just want to sit and rest a while and your not given chance it can be so disheartening and so you make yourself do whatever needs to be done and face the consequences!
England, United Kingdom