I had an incident when I was young I felt like my body was on fire. Was taken to the hospital found nothing. 1995 started getting Iritis in one eye then both off and on for years. 1997 I have had back pain and nerve pain in my back that went from my butt down my leg to where I couldn’t walk. I have had x rays and was told I had degenerative disc In my back. I ended up getting iritis several times one or both. They kept saying something was going on in my body so they would send me for blood work again nothing. I started feeling like I had the flu in 2008 but never went to the Dr because I never ran a fever or was vomiting or anything, just very tired and hurting all over all the time. So my family Dr took routine blood work and called me and said I needed to go to a specialist because I had lupus. So went to the specialist and he never ran aby blood work but diagnosed me with fibromyalgia. I went to him for a couple years. Told my doctor he wasn’t helping me I’m getting worse so he sent me to another RA specialist. The new one did nothing but say I had what the other Dr. said I have is what I have. So did nothing but go home stayed in pain day after day abd cryed. July 5 2012 I ended up in the hospital because I was in so much pain I couldn’t move my arm. They said I had inflammation in my body but dud nothing. So again I went home cryed day after day in pain exhausted all the time. So one day I stayed home from work on a Friday and looked on the computer and prayed found a Dr. Called maid an appointment went in cried to her told her what was going on and she did blood work and she found out what I had. She said you havr ankylosing spondylitis. I was like what even though I was relieved to know someone found out. This was 2013. Right away started me on meds. Even though I’m still struggling she continues to change my meds take my blood and is continuing to try to help me. I’m 51 and living with this disease. I hope one day they will find a cure.
My name is Karen Lawson the face of ankylosing spondylitis.
Nevada, United States of America