I was diagnosed with Ankylosing Spondylitis in August, 2009 at age 16 after three years of debilitating symptoms.  I inherited the disease from my Dad who is completely fused in the neck, spine and shoulders.

Talking, or even writing about my disease makes me unhappy and frustrated.  I’m putting this to the fact that I’m still young and am still trying to do things at 110% including volunteer work, college leadership activities (I think you guys call it a Sorority?), part time work and University studies.  Hopefully, sometime soon, I’ll be completely at peace with it.  I’ve accepted my disease and the course it runs but for now I think I’ll continue conveniently forgetting it exists.


New South Wales, Australia

One Response to “K.H.”

  1. Dear K.H,
    Thank you so much for sharing your story with us. Remember from this day forward you are never alone.
    Sincerely Cookie

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