I was diagnosed with as 2 months ago! I think it is great there is an awareness project I had never heard of it and few people I have mentioned it to have either! I started having acute hip and back when I was 15, doctors then said it was bursitis or I needed to strengthen my back muscles, although I was active part of the time I was a very busy person always worked sometimes two jobs, but recently it got to be unbearable! I have read story’s much worse than mine and can’t imagine what some people go through. I hope there is someday a breakthrough for this and many other diseases that make people’s every day miserable!!
Indiana United States of America