I was diagnosed with as 2 months ago! I think it is great there is an awareness project I had never heard of it and few people I have mentioned it to have either! I started having acute hip and back when I was 15, doctors then said it was bursitis or I needed to strengthen my back muscles, although I was active part of the time I was a very busy person always worked sometimes two jobs, but recently it got to be unbearable! I have read story’s much worse than mine and can’t imagine what some people go through. I hope there is someday a breakthrough for this and many other diseases that make people’s every day miserable!!
Indiana United States of America

One Response to “John”

  1. Dear John,
    Thank you so much for sharing your story with us. I am glad that you were able to locate all of us. One day when there is a cure found, we can all be proud to know we did our part.

    Sincerely Cookie

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