I started having issues in 2020. My first rheumatologist made me feel crazy, he kept saying I have fibromyalgia… wouldn’t even check my back after it locked up (I also had wide spread body pain)… I forced him to send me to someone else… within 4 months of seeing my new rheumatologist I was diagnosed with AS and damage was already done. I am negative for the gene as well (but did research and browsing my DNA on 23 and me, I have the other 5 genes associated with AS). I am currently 29, mother of 3, I went from working in a tire plant and lifting 50 pounds regularly to now fighting disability. I am in pain management because surgery isn’t an option. Disability has said I can’t work any past jobs but I’m still fighting them. Praying for a good outcome. Some days mentally, I’m ok. Other days I can’t believe I have to do this for the rest of my life. I know many understand but it’s exhausting. I wish I could be who I was 3 years ago. But still a warrior and going to continue fighting, even if it’s with myself.

Oklahoma, United States of America

One Response to “Jessaka”

  1. Dear Jessaka,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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