Jeania Smith

my name is Jeania Smith I am 27 years old and I have A.S. HLA-B27 positive for me the symptoms began as a teenager in Ohio , before I even graduated high school I was in the er with excruciating hip pain, I was chalked up to “growing” pains over n over, I married my high school sweetheart and he joined the navy and we were off to Illinois for his training etc, I was always in pain and more than once had to use a cane to get around much to my humiliation 18 years old using a cane. I was miserable for a really long time, then my daughter was born,and we quickly learned I was pregnant again, immediately after my son was born I had my worst flare ever.It was in my hips my rib cage breathing hurt, moving hurt I screamed awake from the pain. I had no idea what was going on I had become used to a certain amount of pain in my life but this was unbearable I could barely reach over to pick up my newborn son. I have seen doctor after doctor rhuemies and chiropractor, no one knew what was wrong, I had x-rays showing nothing blood work was always negative for the rheumatoid factors they were looking for. I was chalked up to being a pill hunter and a druggie. I cannot express how many times I have looked a skeptical doctor in the face while they told me I was to young to be experiencing this. YOU THINK?! I was officially diagnosed November 2011 after a cross-country move to Oregon and still flaring, the rhuemy gave me a sixteen part series of x-rays showing damage in my hips, he will only tell me there is minor damage, I’m currently on sulfasalazene and start embrel in a couple weeks because I failed the sulfazene. my children are my world and I’m still coping with being “diseased” coping with the fact that this is me, this isn’t who I wanted to be, I hate everything about this disease and everything it takes away, I have ok days and bad days and the pain makes me angry and grouchy and in a fog, I cannot wait for the day someone finds a cure, until then I intend to Stand Tall not only for myself but for my children.
Oregon United States of America

One Response to “Jeania Smith”

  1. Dear Jeania,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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