I have had a Fibro diagnosis since 2010 and since I did not have health insurance was not able to get tested until this year after several ER visits, herniated discs, pinched nerves and disabling pain that would just not go away had me apply for disability and although I got denied, at least I was approved for medicaid and was finally diagnosed with AS in February 2013. I am a single mom of 3 girls 11, 14 & 19, had my own business & could not sit still until the pain & fatigue hit me like a bus & got progressively worse about 4 years ago. My life has since changed dramatically, I can no longer provide any real income to my family and am slowly falling into more & more debt. I don’t dance, wear heels, read as much (my fingers go numb, hurt & get pins & needles feeling after a few minutes holding anything!), garden all of which were my favorite hobbies due to the pain. I was in an abusive relationship and had just gotten out of that after 18 years so thought I was finally going to live life when A.S. came & stole my dreams away. I wanted to go back to school & become a nurse as I only got as far as a CNA, travel, volunteer, have fun, make friends, all the things I wasn’t allowed to do before. I have found great peace after starting my walk with Christ & reading the Bible, it gives me comfort , hope & purpose in the midst of my storm. I try to stay positive although we know there are many days when the pain just doesn’t let that happen but I take it with a grain of salt & hope for a better day tomorrow. I try to take comfort in the knowledge that if it weren’t for A.S. I’d be so busy working and in the rat race that I wouldn’t be enjoying my girls to the fullest. That’s it for my story & keep the hope that this life with the struggle & pain of A.S. is still beautiful & worth living.
Florida, United States of America