Ian

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Hi my name is Ian, I’m a 40 year old father of 3 from Newcastle upon Tyne England, i was diagnosed about 5 years ago after 7 years of going back and forth to rheumatologists, doctors etc, and was beginning to be made to feel i was going mad, or some sort of hypochondriac, i persisted and was referred to a professor of rheumatology who knew what was wrong with me after 2 appointments! I was confirmed with AS via MRI evidence of inflammation in my SI joints, The relief that i finally knew what was wrong with me and it wasn’t all in my head after all was fantastic, I was able to start on enbrel, but couldn’t continue as i developed a rare form of cutaneous lymphoma, so rare infact my case was made into a poster for a medical conference, (don’t worry, I haven’t let the fame go to my head 😝) so now i am unable to try any more biologicals and amongst all that, my marriage broke down! But almost a year on from that, i am stronger than before and refuse to let my condition get the better of me, I’m in a new relationship with a wonderful woman that understands my disease and limitations, so no matter what hand life deals you, don’t ever give up

England, United Kingdom


One Response to “Ian”

  1. Dear Ian,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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