During the summer of last year Rascal Flatts song ” I WONT LET GO” was on the radio all the time – it is my sons and i favorite band and we both love this song – however once he was diagnosed this song got a whole different meaning to us both…
Hello there I’m Tina, my son Hunter is 14 yrs old – he was diagnosed with ASS almost a year ago ( yes we call it that and i let him say it figures least I can give him since I can’t take away the pain) he is in pain of some sort every day not just back but legs, ankles and elbows … but is strong and determined to not let it effect his childhood – although he crushed that he isn’t allowed to play football anymore he is still playing baseball and active and we are grateful for that, he is currently taking 1000mg of NSEDs a day and 2 different stomach pills … This disease came to a shock to both of us and broke my heart in a million pieces – I hadn’t even heard of it until oct 19, 2012 when he got ill and in pain for weeks prior – trips in and out of the ER and after running a million test trying to figure out what was wrong with him he finally came up positive for this – no idea why they ran this test but i was crushed to hear my perfect little blonde hair blue eyed baby was facing a lifetime of pain that His mommy can’t fix … I still feel helpless- However I have to say there was a sort of relief, for the both of us, to finally know that years and years of these ” growing pains” drs always diagnosed him with were real , granted not a diagnosis we ever wanted, but at least it was finally an answer and diagnosed early and thankfully we live by Cincinnati who is one if the top ranked children’s hospitals in the country – this I am also thankful for , they are amazing !!!
This is the beginning of our story …..
Ohio, United States of America