My name is Eric Skaggs and I am from smiths grove, ky. I this year will be 52 years old. I was diagnosed with AS at about the age of 35 at Vanderbilt hospital in Tn. Always had alot of back issues and arthritis since a young age. After being labeled with as and starting meds for treatment in about 2004 my rheumatolist that diagnosed me died suddenly with cancer. So until now I have not had a rheumatolist. My family doctor has been treating me. In past years I have had 2 to 3 rounds a year with infection and get through it. A few years ago was put on embrel injections and done well until was discontinued due to bad lung infection. The past 3 years have been a challenge. In 2011 had a shoulder redone. In 2012 had my rt knee redone. In march of 2013 was hospitalized with a possible heart attack, but wasn’t. April 2013 hospitalized for a heart cath to find as had affected the electrical part of my heart. In may 2013 after meds tocorrect not work had a ablation. The ablation did not work. June 2013 had pacemaker implanted. July 2013 2nd pacemaker implanted. Everything seemed to be working better after this but then in sept 2013 started having breathing problems again. Did not mention in about 2011 labeled with copd due to the fact spine stiff and now more recently sternum froze up so lungs cant expand any more. Sept 2013 was sent to tenn heart Institute where I was told due to AS had a dialated aortic root causing extra pressure in chest. I have bowel problems from all the meds I have to take. Dec 2013 hospitalized with severe lung infection being given antibiotics and steroids by iv. Been struggling ever since trying to find someone or some treatment to help me get just stabilized. Spent this past weekend in hospital for severe spinal infection. Dr wants to send me to mayo clinic to try to get everything under control but financially can’t. I now have a family dr, 2 cardiac drs, a stomach dr, a neurologist, a pulmonalogist and an orthopedic dr. Now facing a new rheumatolist and hopefully a new treatment plan. Been told need a new knee. AS not only attacks joints but it is now attacking all my organs and dr’s don’t have a clue what to do. Need more awareness. Used to plan ahead now its one day at a time.
Thanks Eric Skaggs Smiths Grove, KY. if anyone close to me with AS I’d like to hear from you.
Kentucky, United States of America