It all started in September 2006, Dillon, age 8 broke out in a weird rash.  It started on his chest, then went to his upper arms.  I took him to the walk in, told it was an allergic reaction.  By the time we got home, it was on his back and neck.  Went to the emergency room, put in a contagious room, three doctors later, no one knows.  I took pictures, and the next day got him in to see his pediatrician.  The rash was gone, but I showed her the pictures and she knew what it was.  Dillon was sent for blood work and we got the call 3 weeks later, Dillon is HLA B27 positive.

When Dillon was younger, we were always told it is “just growing pains”, one day he would be fine, the next he couldn’t crawl.  By the time he could walk, his knees were so swollen.  He couldn’t grasp things with his hands and was very clumsy.  When Dillon was a year old, his dad was diagnosed with Ankylosing Spondylitis, he was 31 years old.

Since Dillon’s diagnoses he has been in and out of the hospital for joint and stomach problems.  His diagnoses at age 8 was enthesitis related arthritis.  By the time Dillon turned 16, the rheumatologist added the diagnoses of enthesitis related arthritis with sub type Ankylosing Spondylitis, he has also be diagnosed with Uveitis.  Dillon just started Humira to his medication regiment.

Dillon is not a typical 16 year old boy, his last flare up lasted 103 days!!  A third of a year!!  Dillon attends high school, and he is going into grade 11 this year. Dillon also plays on the school drum line.  Dillon has an older brother and a younger sister (who is also HLA B27 positive) luckily it isn’t active.

Ontario, Canada


One Response to “Dillon”

  1. Dear Dillon,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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