My name is Debby, I live in WV and I have Ankylosing Spondlitis. I believe this started when I was in my 20’s. I say this because  this pain started back then. I went to so many dr’s and none could find the problem. I finally, after about 10 years found a dr that knew exactly what was going on and I was then diagnosed. I am now 52 and suffer everyday through the pain,  And because at that point, I was told I let it progress too far, I, who have been to numerous doctors, but I let it progress too far. I have yet to find anything to help with this pain. I am unable to work because of the pain. Just something as simple as sweeping the floor is somedays unbearable. Do I want to get out of bed in the mornings? No, but I do, because I’m a fighter and I will fight this through! And I believe help is coming! So many of us are waiting for some relief to the pain, that I know it will happen! Please everyone, join us and help us to find a cure for Ankylosing Spondylitis

West Virginia United States of America

2 Responses to “Debby”

  1. Dear Debby,
    Thank you so much for being a part of my vision!
    Sincerely Cookie

  2. Hey Debby
    I too have Ankylosing spondylitis and have had it for many years. I know I had something going on in high school and my uncle had it but I just thought it was just arthritis and some other people have arthritis and they seem to do ok but at 15-16 years old I would be ok. When I turned 17 I was in X-Ray school and still didn’t have a diagnosis. I was about 31-32 when I was diagnosed. It was not easy dealing with pain and going to school and work. I’m now 59 and can’t go any further working. Self medicating was the key to me getting by. By the way I too am from WV, Mingo county. Take care and best of luck.

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