Debbie Skytte

My name is Debbie Skytte and I have suffered for many years but I am newly diagnosed with AS and Fibromyalgia. I had random swelling and pain at the age of 11 and 12 years old. Specialists at the childrens hospital wanted to say I had AS at the time but said I was far to young.I see now that juvenile ankylosing spondylitis is an accepted illness. 19 to the age of 23 things seemed to slow down and I was doing well but after the birth of my children I have suffered. I have had horrible experiences with doctors and lost my faith and trust in them. My new family doctor sent me for an MRI and a new reumy. Well here I am 38 and newly diagnosed. I live in the Northern part of British Columbia Canada and specialists are hard to come by and you wait months to see them. The Reumy I met would like me to go on Humira but i am nervous about this type of medication. My family Dr, says its a bad idea but I feel like he doesn’t even understand my illness and he makes me feels like i’m just depressed and i need more exercise. I walk for 5 hrs a day and my heels kill me i cannot imagine more walking. This web site has answered a lot of my questions and it is nice to speak with people who finally understand what I am feeling. My friends and family are great but have very little knowledge of the disease, so their understanding is limited. Everyone I tell about Ankylosing Spondylitis have never heard of it so we need to get word out there to get more research happening.

British Columbia Canada


2 Responses to “Debbie Skytte”

  1. Dear Debbie,

    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Debbie, check out the No Starch Diet on KickAS.org.

    Check out Alan Ebringer’s work on AS.

    Jeff

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

 
%d bloggers like this: