My name is Dale Alford and I live in Melbourne , Australia.
I was diagnosed 2 years ago.
Long story but they were looking for an answer to the abdominal referred pain I was getting everywhere but my back. I did some research, spoke to a rheumy my GP referred me to who said I couldn’t have AS as I was too flexible. Years of boxing and genetic hyper mobility in my joints might have had something to do with that . I went back to my GP who agreed a blood test wouldn’t hurt . It came back positive so the rheumy agreed to test further. The diagnosis was confirmed 2 days later, so nearly 2 years wasted looking in the wrong places including one unnecessary operation. I am currently taking NSAIDS and Lyrica , but will probably start on TNF inhibitors in December. Good days and bad days, but at the moment I am managing to live a reasonable if somewhat restricted at times life.