Colleen Hnilica

Started having pain in my early 20’s. Everyone told me it was in my head. I suffered for so many years until I started getting iritis. My eye dr thought he knew what the trouble was and gave me a name for it. I went to a rheumatologist and sure enough it finally had a name. Trouble is way back then they put me on celebrex and told me there was nothing else I could do for it. Years later I am totally fused from my neck to my tailbone and I only have daily mild pain with the exception of a lot of headaches from my neck and I cant run, jump or do anything really physical. I am now 59 and have learned to live with it. I am fused with a bent neck and have little self esteem about the way I look. The saddest part of my story is my now 28yr old son who was diagnosed at 14 and has since had both hips replaced already and walks with a cane. He is very bent over and in extreme pain daily. That hurts me worse than any pain I have ever been in. Thanks to this group and others like it I feel like finally we are not alone!

Tennessee United States of America

2 Responses to “Colleen Hnilica”

  1. Dear Colleen,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Colleen, We have tried to reach you since after Eddie’s passing. You are so positive. A hero for many. Please contact us.

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