My name is Colin Misconstrued (yes it’s my real name) and I am from Kansas City. I was diagnosed with A.S. last December. I’ve had psoriasis and psoriatic arthritis for probably 8 years, but nobody ever put the two together. I was probably 8 or 9 when I started complaining about joint pain. It started in my knees, shoulders, and neck. The often response was that it was growing pains and that I should just push on. I’ve had a problem with a stiff neck and migraines ever since. The final straw was last fall when I got so bad, I could barely walk. I finally found a pcp that I liked and was referred to see a rhumotologist. That was the turning point in what would become the rest of my life!
Armed with the knowledge of what is wrong with me, I can move forward fighting my A.S., with more than just luck. I’m changing my diet to a more paleo approach and it seems to at least improve my stamina. I’m not one for taking a lot of pills and can’t really afford the biologics, so I decided to start with the things I can control. My wife has narcolepsy, and together we rely on each other for a lot. I am always looking to connect with fellow spondies, for they can truly understand what my challenges are.
I am very much an adventurer and avid extreme sport junky, which I fortunately get to enjoy with my wife. I figure what the hell, it’s the only chance I get to enjoy this life! I can’t say that my A.S. doesn’t drag me down at times, which is usually the most in opportune moments. I always seem to pull through and live to fight another day….stay strong my fellow Spondies, there is hope out there for all of us!
Kansas, United States of America