Casa DeLeon

Hello my Name is Casa DeLeon, I am 32 and I live in Webster, Texas and have probably been walking around with an A.S. diagnoises for about 3 or 4 years. Its really hard to tell. I mean I know I have it written down somewhere, but my days pretty much flow together and my mind is not as sharp as it use to be.

I hadn’t planned on writing a story because I felt somewhat inadaqaute. I know that I sill cause there are many people out there who are like me. But I have always been over weight since high school when my troubles began…first doctor said it was Britiathis in my hips and if I was to lose the weight that I would be just find. The pain levels  occured during this time were severe I had to use a can to get around school at times and sometimes I was normal. But that is where it stopped at with the diagnose. gave me Mobic to control inflamation. Like I said i was just recently diagnose with A.S. but before that it was Fibromyalga..which that truned out to be only partially correct. But since from the time I have been having pain back in 1995 to now it took them so long to determine what I was dealing with that the Crippling effects where starting to take its toll on me…My family tried everything that they possibly knew how to stop my spine from curving and getting worse but with out a diagnose pain meds were all they could give me.

Currently I am pretty much hunched over when I stand. Its so lonely and depressing I havent found the right supposrt system here but I pray that I will. My days get pretty dark. Even though my family is there for me…I can get pretty down right dark. ANd others just do not get what’s really going on. I have come close to ending it all but something pulls me back from the depths….

I am considered no permenatly disabled….I want to work cause I am such a people person…but finding the medium of what I can and can’t do has been impossible for me anyways.

I am 32 I do not work, married, can’t have children because of the A.S. at least the stage I am in. I am in pain 24/7 even on good days..this is just a breif start to my story because now I am siting at a computer and its starting to hurt. hopefullly I can continue or add some of the poems I have written about  it. I really appreciate this site and the people of Faces of Ankylosing…it means so much. I wish I had a shirt to wear that could explain cause I do get tired of explaining, its like no one believes you. Well thanks again

Texas United States of America

One Response to “Casa DeLeon”

  1. Dear Casa,
    Thank you so much for sharing your story with us. I understand about the darkness. My husband is the reason I am still alive today, not because of how much I love him, but because he stopped me. Now I am in a place in my life that I am thankful he did. Remember from this day forward you have 400 plus people who care.
    Sincerely Cookie

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