My name is Brian Swope and I am from Johnstown Pennsylvania and diagnosed with Ankylosing Spondylitis in May of 2010! My problems all started back in the late 80’s with neck,arm,back and leg pain thinking that as a mechanic I was just “sore and achy”! Finally in 1996 after tons of therapy thru the years I had 2 lower back surgeries and in 2008, 2 neck surgeries. My one lower back surgery consisted of going in thru my stomach and inserting dials with fusion! My neck surgery was a “plate” fusion and then spurs removed from the back of my neck! (never any total relief) Finally in 2010 my doctor decided on an appointment with a rheumy and he knew immediately when I was examined what it was thru blood work, the dreaded old HLA-B27!!! I do and always have suffered with pain, stiffness and most of all fatigue, with pain and numbness, spasms, tremors in my arms and hands with weakness. I live for my injection of Depro Medrol which I receive every 4 to 6 weeks! I also suffer from neuropathy in my lower extremities! I would love to find a daily oral medication and maybe get a little more relief vs.: the 4 to 6 week injection! Open to any advice from anyone as I have one of the worse cases that my rheumy has seen and we are sure this probably started back in the late 80’s.
Pennsylvania, United States of America