My name is Amy Millios….I am 36 and live in Andover, NH. A year ago last May I was diagnosed with AS, and life has certainly been challenging. After many years in human services, and almost as many in IT, I can no longer work and have joined the ranks of the disabled. But I’m hoping this is temporary. While I work to develop an optimum diet and exercise routine, I am also planning to apply to graduate school. Each day is precious and I continue to discover what is most important to me. I do get discouraged at times at what I can no longer do, what I used to be able to accomplish with ease, but I do my best to not focus on it. I choose instead to focus on the possibilities. A former teacher and mentor gave me a poem awhile ago that helps me in this…it’s by a poet named Kay Ryan, entitled
Patience is wider than one once envisioned, with ribbons of rivers and distant ranges and tasks undertaken and finished with modest relish by natives in their native dress. Who would have guessed it possible that waiting is sustainable– a place with its own harvests. Or that in time’s fullness the diamonds of patience couldn’t be distinguished from the genuine in brilliance or hardness.
New Hampshire, United States of America