I was diagnosed in May of 2014. I have went many years with symptoms that I had no idea was related to AS. I didn’t even know what it was. When my Rheumatologist was telling me about it I was terrified she didn’t say much it was the tone in her voice and the look in her face. She never actually told me what it was; I was handed a paper and then looked at it on my way out. Right away I Google it on my phone and sat in my truck crying. I continued to see the Rheumatologist well she was the NP of the office until I finally saw the head doc. He was no better; he was 4/5 hours behind as usual. I was told he likes to spend time with his patients well not this day not with me. He wouldn’t let me speak just kept saying let him do his job and cutting me off. I asked him what he was about to inject in my hand he said the nurse will tell me do I want to feel better or not. Of course I let him do it but could not believe how he was treating me. He ended up getting things done. The test that I have been waiting since may finally came in the mail with a doctor that can do them and he got my remicade approved. I saw him on October 6th, he got my remicade approved and soon after I got my first treatment. I am so scared. I’m in so much pain I can barely function day to day. Depression has set in anxiety has gotten worse. My pain isn’t managed because they tend to look at my age not the disease. My breathing is just getting worse. I have 3 children two girls ages 15 and 11 and a 5 year old boy. I’m not working, I have no income everything is going downhill.
New Jersey, United States of America