Face 1563

Hi, my name is Amanda, I’m 31 and I was recently diagnosed with ankylosing spondylitis. My lower back and SI joint pain started around age 14. It’s very hard to get doctors to believe that a person at such a young age is experiencing back pain. I complained and complained to my mom until she finally set me up an appointment to see a doctor. I went through a series of X-rays that came back showing a slight curvature in my middle back, and nothing more. I went through physical therapy but nothing seemed to help. As I started getting older I noticed that my back pain got progressively worse. Especially at night and early morning. I had gotten to the point where I was going through 12 extra strength Tylenol a day just to be able to barely function. I knew something wasn’t right. At 31 I knew this couldn’t be normal pain from getting older. The Alternating SI joint pain (which at this point I was convinced my sciatic nerve was pinched) was getting so bad I had to take multiple breaks at work, and every slight movement while laying in bed at night would jolt me awake. I finally broke down and made an appointment with my family doctor. I told her everything! And there sure was a lot to tell. I know she could see the desperation and exhaustion on my face and she knew something wasn’t right. I was sent for more X-rays and blood work and she called me back a few days later to tell me that the X-rays were showing sclerosis on both SI joints. A slight widening on the left side and an almost complete fusion on the right. My sed rate wasn’t elevated, so she sent me to a rheumatologist for more extensive blood work. My rheumatologist found I was HLA positive and suggested all my close male relatives get tested as well. After 17 years of constant pain I finally had my diagnosis. The meds seem to be helping but I still have my bad days, and have learned to really appreciate the good days. I know the rest of my life will be a constant battle with my own body, but I only have one and we are learning to live together. Thank you for reading!

Ohio, United States of America

One Response to “Amanda”

  1. Dear Amanda,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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