A.S. Faces Makes History!

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The Faces of Ankylosing Spondylitis on Spondylitis Association of America Website

A dream doesn’t become reality through magic; it takes sweat, determination and hard work.

October 4, 2012, The Faces of Ankylosing Spondylitis made history, well in my eyes and those of us that suffer from Ankylosing Spondylitis feel that way.

We spend so much of our personal time, money and our “spoons” working to raise awareness for this disease, that it has finally been recognized and validated and honored at least that is how I feel.

The Spondylitis Association of America posted on their website the following….

Drum roll please! ~~~  We have an announcement to make!
To help celebrate the upcoming One Year Anniversary of The Faces Of Ankylosing Spondylitis, and honor everyone who has bravely shared their face and story, SAA will be featuring Faces of AS on our site!!
We are highlighting the project, as well as the individual “Faces” on our site, one by one, on its own special page.
We hope to eventually have all 1,000 Faces (that the project is well on its way to collect!) linked to and featured on SAA’s website.
We salute and thank the creator of Faces of AS – Cookie Hopper, and everyone who has sent in their stories so that others may know that they are not alone.
This week’s featured “Face” is the first entry – Kevin Andrews. We hope you will revisit each Face with us, and share them again so that even more people will know about this wonderful project, and know that “AS has a face”!

They had honored us by approaching me about posting stories on the site, I figured we would be mixed among the Your Stories section. Humbled by the request I couldn’t say no!  Imagine my suprise when I realized that they kindly designated a complete section to us. A WHOLE SECTION and PAGE! It doesn’t get any better than that folks!
We did it, ALL OF US, together, everyone who submitted their story, shared their story, tweeted, forwarded, read, posted and shared, every thing any one did made a difference to bringing us to this  point in Ankylosing Spondylitis  history.
I hope this will encourage others to follow their hearts and know that you can be the change you want to be, you just have to do it.
For me personally this has been life changing, heart lifting and soul healing, because I took a lifetime of what a disease took away from me, BACK.
I took back all the pain, the depression, the hell that the doctors and this disease put me through and made something beautiful out of it.
Today when I woke up, my spirit was light and soothed, my albatross (A.S) no longer has the power it once had, I am looking forward to seeing what I can accomplish next.
Thank you all for a remarkable year.
Spondylitis Association of America…. I am doubtful you will ever realize the magnitude of pride, you have given to each and every one of us, by not only validating us as human beings and individuals but by giving a voice to be heard, and a place to be seen.
I will be forever grateful,
Sincerely Cookie Hopper
Dearest Cookie,
Thank you so much! It is our immense pleasure and honor to give a second home to your beautiful Faces of AS project on SAA’s website. We share the same goals and dreams, and it’s a wonderful thing when we can all work together to move closer to them. Your project has already given the over 600 people a voice, YOU did that; and if we can help amplify those voices so more people hear them – we are thrilled to do it!! ♥

9 Responses to “A.S. Faces Makes History!”

  1. Only word I can come up with & with tears in my eyes is AWESOME!!!!!

  2. Bravo big sis!

  3. It has been a great honour to be part of Faces of AS. I can’t believe it has been a year since I submitted my story as so much has changed in my life. This group has given me courage and encouragement, strength and most importantly, love and understanding. It has been a blessing to meet you and all my AS friends/bothers and sisters. Love you all and because of you I am never alone. Way to go Cookie! I just knew this would be a great journey the day I saw your post. ❤ 😀

  4. Speechless Cookie!!! I think we can all say…Cookie, “You’re Awesome!” xxx

  5. Wonderful!! A big THANK YOU to Cookie! 🙂

  6. Elin wrote: “Dear Cookie Hopper, Your wonderful project, The Faces of AS is being featured on SAA’s website! We salute you, and all of the Faces for sharing so much of yourselves with the Spondylitis Community! Thank you for all of your hard work and passion! “

  7. Jennifer wrote: “That is fantastic news! I’m thrilled to hear this – way to go Cookie Hopper! And way to go SAA for recognizing the community this way.”

  8. Kimberly wrote: “This is very good. I feel that there is a lot to be learned from the stories. I was floored when the first story I read sounded like I had written it. Then another, then another. For me, 30+ years before diagnosis and the damage is done. Our children and their children will benefit from what we do today. Thank you Cookie Hopper for your courageous project and determined work to bring it to reality. You saved me and took me from feeling alone to wanting to fight along side you. Bring on the 1000 faces.”

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