A S Faces And SAA Supporting Each Other
My name is Cookie Hopper, creator of “The Faces of Ankylosing Spondylitis” Website and Information Board. These websites were created in memory of a young man who in the midst of his pain lost all hope and took his life, and a young woman who during her last days on earth was an inspiration to all of us. I wanted to make a difference in our community that would reach people globally and at the same time honor these two very special people.
My vision was to create a place where people could be honest about their lives with A.S. and where our community could honor our challenging lives. A place where those who suffer with A.S. know someone cares, where we know we are not alone because we are in this together.
But this is not just about A.S. It is about experiencing the uncontrollable destruction of life. It is about finding the courage to fight for a better quality of life; it’s about finding the hope to continue to live the best life possible, all while struggling to find the faith to do so.
It’s time we take a stronger stance in bringing more awareness, research and funds to our battle against Ankylosing Spondylitis. I want to take this opportunity to thank the Spondylitis Association of America, and all the individuals who have helped me along the way. Their work and determination to make a difference in the AS community will never be forgotten.
So many of you have offered to help with the cost of my project, and so I decided to create special bands that honor us all living with Ankylosing Spondylitis. These bands will help us make a difference in raising awareness, funding for research, but mostly they will honor those who suffer with this every day.
We can’t do this alone; remember we are in this together. The Spondylitis Association of America has been kind enough to join forces with me in this project, will you? Remember no donation is too small; everyone matters in our fight against A.S.!
If you would like to make a donation or purchase the bracelets by phone, you can call SAA at (800) 777-8189 (U.S. only) or (818) 892-1616.