A.S. Face 2197: Johnny

My name is Brandi, and I wanted to share my father’s story.

This is my dad, Johnny. His symptoms came on suddenly when he was 17 years old. He was already a husband and father by that time (crazy, but true). It would be more than 10 years and countless doctors before he was diagnosed at 28. He worked construction and there were many injuries along the way. Injuries worsened by the AS. He had his first joint replacement before his 40th birthday. Many more followed. He struggled with the pain and the need to provide for his family. He turned to illegal drugs that allowed him to do that. He eventually got clean and he lived with the daily, constant pain. As if that wasn’t enough, he carried guilt after my own diagnosis when I was 16.

He passed suddenly in January 2016 at 48 years old. He was a husband of 32 years, a father of 2, and grandfather of 6 (his pride and joy, by the way). He had accepted Jesus as his Savior years earlier so I KNOW that today he’s free from that bondage of pain.

Mississippi, United States of America

September 2, 1967 – January 7, 2016


3 Responses to “A.S. Face 2197: Johnny”

  1. Dear Brandi,
    Thank you so much for sharing your father’s story with us.
    Sincerely Cookie

  2. Thank you for sharing this Brandi. I’m so sorry for the loss of your Dad at such a young age. But it does bring joy to know that he is free from the pain and suffering of AS. I honestly feel like there are so many people that have become addicts due to misdiagnosis of AS. So my heart goes out to them through all of their pain and suffering. May God bless you my AS sister. Hugs!

  3. I am 47 and can relate to his story so much!
    When you are in pain you will try anything, I know.
    As I am proud of my daughters I am sure he is proud of the way you just honored him. What you did touched my heart.
    I pray for you and your future with AS. Enjoy life and surround yourself with love. That’s the best any of us can do wether we have AS or not.
    Best regards!

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