A.S. Face 2177: Patrick O’Neill

Face 2177

Hey there I’m Patrick and i have AS. I was one of the lucky ones that got diagnosed in less than a year. I have been fighting AS since October of 2012 and I’m still fighting. When the pain first came I was told it was sciatica. Then it started to get worse I was unable to walk, when I coughed pain would shoot up and down my spine. It was the darkest days of my life. But I pushed through it like a champ. I was seeing my primary care at the time. He was doing every test out there till we got to the MRI of my lower back and hips. I still remember the day I got the call as I walking into work. I remember thinking my life was over the second I got off the phone. Needless to say I never made it into work that day since I was so distraught. Within a week I saw my first rheumatologist in Nashville TN at Vanderbilt. But within 2 months she shut down her practice and moved out of state. I was devastated but determined to fight to my last breath. I found a new doctor at ST. Thomas. Dr. Lyons in my mind is my lifesaver. Even though I have tried every biologic, I take humira ATM and barely take pain pills, I keep fighting AS every day. But with the use of modern medicine comes the side effects. On December 19th 2018 I was diagnosed with AVN of my right hip from steroid use. Which meant the end of my steroid use to fight AS. Within 3 weeks I had a core decompression on the hip. This was my second surgery of the year and I knew I had to keep fighting. Luckily the core decompression put the AVN on hold and I’m now comfortably walking around with hardly any pain. 6 months later I’m active and will not let anything bring me down. The biggest thing about this disease is you can not do it alone. Having the support will make sure you keep fighting AS.

Tennessee, United States of America

4 Responses to “A.S. Face 2177: Patrick O’Neill”

  1. Dear Patrick,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. I love the crap out of you

  3. Amen brother it takes a having family and friends for support thanks for sharing your story
    God bless

  4. Lots of support from Wisconsin and of
    course Cookie too for bringing us
    all together !
    ☮️✝️ FACE 2000

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