A.S. Face 2156: Alexandre

Face 2156

Je suis Alexandre, j’ai 21 ans et j’ai une spondylarthrite ankylosante depuis mes 16 ans. Celle-ci a seulement été diagnostiquée en juillet 2017 après de longs mois d’attente.

Aujourd’hui, je suis étudiant analyste programmeur en dernière année. Les études sont très difficiles à associer avec les douleurs, mais j’y arrive comme je peux.

Je fais partie d’une association de patient belge, « Arthrites ». Celle-ci m’aide beaucoup. Les membres sont vraiment très accueillant et à l’écoute des autres membres qui ont besoin.

Mon souhait pour le futur serait de trouver des traitements encore plus efficaces que ceux existants et que les douleurs soient moins intenses pour nous tous.

Avec amitié,

Alexandre

I have an ankylosing spondylitis since july 2017.
I am Alexandre, I am 21 years old and I have ankylosing spondylitis since I was 16 years old. It was only diagnosed in July 2017 after long months of waiting.

Today, I am a student analyst programmer in the last year. Studies are very difficult to associate with pain, but I get there as I can.

I am part of a Belgian patient association, “Arthrites”. This one helps me a lot. The members are really very welcoming and attentive to other members who need.

My wish for the future would be to find treatments that are even more effective than existing ones and that the pain is less intense for all of us.

With friendship,

Alexander

2 Responses to “A.S. Face 2156: Alexandre”

Cher Alexandre,
Merci beaucoup d’avoir partagé votre histoire avec nous
Aincerely Cookie

Dear Alexandre,
Thank you so much for sharing your story with us.
Sincerely Cookie

Cookie Has A.S. said this on May 21, 2019 at 10:57 am | Reply
Welcome Alexandre
I hope you find the support you need
thru this group. We all have crummy days
and days that we manage to somehow
make it thru.
Cookie has done a fantastic job on
gathering us all up. She’s put so much
effort in this. If you see a FACE or story you
feel comfortable with…..reach out to them !
I don’t know why I’m hesitant in putting my
FACE out there. I guess it’s my story that’s rather scary. I don’t have a number yet BUT soon will.

Happy to meet you
audie

audieann said this on May 21, 2019 at 9:15 pm | Reply

Our Stories

© Cookie Hopper and The Faces of Ankylosing Spondylitis , 2011. There is an implied agreement and permission granted to Cookie Hopper and the Faces of Ankylosing Spondylitis that the participants photo/story will be used only in order to raise awareness for Ankylosing Spondylitis. There will be no monetary value gained by either party. The Faces of Ankylosing Spondylitis agrees to uphold the integrity and honor of each individual’s story when doing projects to raise awareness, and will be a mutual agreement of both parties involved. Once a photo & bio are submitted to Faces of Ankylosing Spondylitis ( Cookie Hopper) , heretofore known as "Faces," the individual submitting to Faces gives permission for Faces or its representatives or organizations coordinating with or whose services are retained by Faces or the invisible illness or Ankylosing Spondylitis community to use the image/likeness, name, & your bio or portions of bio as written, from the moment of submission, for as long as Faces exists as a website and/or organization. All submissions become the property of Faces, and upon submitting, participants grant full rights to the submitted images & bios to Faces, and the right to use & name in connection to activities of Faces, from now into eternity, in all forms of media, including new media, and agree that they are the property of Faces from submission until dissolution of the organization." Once included the removal will not be possible due to being number, but every possible action will be made to change any information if you feel the need for it to be. Unauthorized use and/or duplication of this material without expressed and written permission from this blog’s author and writer of the individual story is strictly prohibited and legal recourse may be taken in the event of this happening. Excerpts and links may be used, provided that full and clear credit is given to [Cookie Hopper] [individual author of the story] [The Faces of Ankylosing Spondylitis] with appropriate and specific direction to the original content. COPYRIGHT and TRADEMARK NOTICE ©2012. There are underlying copyright interests in the various works of authorship associated with this the faces of ankylosing spondylitis. These copyright and trademark interests may not be reproduced and redistributed, with or without alteration in whole or in part, unless prior written permission provided by Cookie Hopper of Alvin, Texas US 77511, along with the individual author of the story. Trademark name “The Faces of Ankylosing Spondylitis” and " I Am The Face Of Ankylosing Spondylitis" name has been approved and acquired by Cookie Hopper February 10, 2012. Others wishing to use this name or logo are hereby requested to contact the owner Cookie Hopper to discuss their interest before doing so. The Faces of Ankylosing Spondylitis Trademark number is 40671 The stories submitted may not be used without the original author’s permission, along with Cookie Hopper, which you may acquire by submitting a request to Cookiehasas@aol.com. The phrase I am the face of ankylosing spondylitis and the phrase the faces of ankylosing spondylitis are protected under the copy right and trademark laws. By submitting your photo & bio to Faces of Ankylosing Spondylitis (Cookie Hopper) you enter into a legal and binding agreement on both parties side. Cookie Hopper agrees there will be no selling of the stories or monetary value gained. Cookie Hopper agrees to uphold the integrity and honor of each individual’s story when doing projects to raise awareness, and will be a mutual agreement of both parties involved. This site is protected under the Trademark and Copy right laws. 40671 as of January 2012.

%d bloggers like this:

The Faces Of Ankylosing Spondylitis